Welcome to The Foundation for Nager and Miller Syndromes
The Foundation for Nager and Miller Syndromes (FNMS)
is an international support group dedicated to helping those
affect by these two similar genetic conditions which involve
severe facial and limb anomalies, but does not usually affect
intellect.
These syndromes ffect one's ability to see, hear, breath, eat, walk, talk and write.
FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes.
FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences.
FNMS has been a parent-run volunteer organization for 15 years. FNMS is a not-for-profit organization with a 501(c) (3) status. This means every dollar donated directly benefits those in need of FNMS services, and that contributions are tax deductible by law.
Please see our donation link to support our services.
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FNMS has initiated and is involved in a genetic research project working to locate the genes responsible for causing Nager and Miller Syndromes through the Johns Hopkins in Baltimore. |
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Scholarships are provided to children between ages of 8-18 years old wishing to attend Camp ABOUT FACE in Indiana (http://www.rileykids.org/camp).
This very special summer camp allows children many positive experiences such as independence, the opportunity to meet others and the chance to counter the feelings of isolation that comes from living with these disfiguring conditions.
FNMS publishes a newsletter, "All About Us", wich reaches out to families, supporters, and professionals internationally.
Articles from this newsletter are reprinted regularly in other various publications.
Through your generosity, FNMS can continue its growth and success in providing these services.
