The Foundation for Nager and Miller Syndromes

Welcome to FNMS Online

Foundation for Nager and Miller Syndromes

The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect.

These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences.

Nager And Miller Syndromes
Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
  • Nager And Miller Syndromes
Nager And Miller Syndromes Nager And Miller Syndromes

Genetic Research

Miller Syndrome Gene Discovered!

Nager & Miller Syndrome Research Projects

The Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing...

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Events

FNMS is fortunate to have wonderful supporters and members.  Each year there are several events sponsored by foundation supporters and families to help FNMS fulfill its mission.  Check out our Event Pages and our Events Calendar to see what is happening next and get the details on the 2010 FNMS Conference.

Events Calendar!

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news
Jun 01
FNMS Members in the News
The Foundation for Nager and Miller Syndromes encourages our members to be active in their communities. Click on the link below to see what we are up to. read more
blog
Dec 28
2010 FNMS Family Conference!...
The FNMS Family Conference is scheduled to be held in Chicago, Illinois, June 24 through June 27, 2010. read more
 
blog
Aug 18
Welcome to FNMS' New Site!
Welcome members, supporters, friends & medical professionals to the new FNMS web site. I hope that you will find this to be one of the most useful an... read more
 
 

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